Over 300 million people are living with one or more of the 6,000+ rare diseases in the world today. I am one; I am rare. In October 2019 I was diagnosed with Granulomatosis with Polyangiitis, a rare disorder that is a form of vasculitis (ANCA-associated vasculitis), classified as an autoimmune disorder. As a complication of […]
Waking up from anaesthesia wasn’t as glamorous or fun as I was hoping it would be. I didn’t really know what to expect from this procedure; I was under 10 the last time I had a major surgery, so this was almost a new experience for me.
Yesterday Justin took me to my first appointment with two of the specialists at the University of Utah that I am seeing for my GPA. This appointment was for my subglottic stenosis, and we didn’t know what to expect, but we are more comfortable and more informed with my current status and treatment plan. […]
When I was in my mid to late ’20s, I started experiencing significant sinus congestion, pain, constant sinus infections, headaches, and bloody noses. I saw a few different ENT’s, was put on antibiotics, recommended alkalol (a nasal rinse), and in 2017 surgery to correct a slightly deviated septum. I decided against the surgery, and time […]