There are certain things that I do each day, part of the semi-routine I have going. Reading is a habit of mine, and I read everything from online op-eds to large historical accounts. Recently my online reading has been overrun by individuals telling me to be successful, I have to wake up at 5 a.m. […]
Archive for the
‘Scrappy Little Misfit’ Category
Over 300 million people are living with one or more of the 6,000+ rare diseases in the world today. I am one; I am rare. In October 2019 I was diagnosed with Granulomatosis with Polyangiitis, a rare disorder that is a form of vasculitis (ANCA-associated vasculitis), classified as an autoimmune disorder. As a complication of […]
This week has been exhausting… and it is only Wednesday. I’m not complaining though, because today was a good news day. I wasn’t sure what to expect as we headed down I-15 to Salt Lake City on our way to visit one of my ENTs to see about my sinuses and ears in relation to […]
Waking up from anaesthesia wasn’t as glamorous or fun as I was hoping it would be. I didn’t really know what to expect from this procedure; I was under 10 the last time I had a major surgery, so this was almost a new experience for me.
Yesterday Justin took me to my first appointment with two of the specialists at the University of Utah that I am seeing for my GPA. This appointment was for my subglottic stenosis, and we didn’t know what to expect, but we are more comfortable and more informed with my current status and treatment plan. […]
Christmas Morning I started taking 60 mg of prednisone daily. I wasn’t really sure what to expect regarding side effects outside of insomnia, which is something that I am already dealing with due to my GPA and low iron levels that have recently plummeted again. Before I began I had a brief conversation with my […]
Happy December! How the year has flown by! It’s been quite a rollercoaster ride for me, personally, this year. It is hard to believe that it’s already Christmas time again. More importantly, it is that time of the year, the Bókatíðinda is out and Jólabókaflóð (yo-la-bok-a-flot) is well on its way! I am one of […]
When I was in my mid to late ’20s, I started experiencing significant sinus congestion, pain, constant sinus infections, headaches, and bloody noses. I saw a few different ENT’s, was put on antibiotics, recommended alkalol (a nasal rinse), and in 2017 surgery to correct a slightly deviated septum. I decided against the surgery, and time […]
It has been over 15 years since I graduated from high school. Now with a high schooler in the house, I am having a lot of memories flooding back as we swap stories, but what I am most fond of is sharing the music I loved in high school and comparing it to the music […]
Music holds a special place in all of our hearts. As Hans Christian Andersen said, “Where words fail, music speaks.” With that, I decided that I would start sharing the playlists that I create with regularity. I have a playlist for just about everything. This playlist, Vol. 1 – Seabatical, I put together to listen […]